Monday, January 28, 2013

Learning About PFFD

If you would like to learn more about Kelli's condition, and the surgeries she will face in the future, you can check out the following websites:

Dr. Paley is the leading doctor in this field.  He has created the hip surgery that she will have this summer.  In the coming years, she will need at least 3 lengthenings.  The links under "Congenital Femoral Deficiency" are the ones that pertain to Kelli.  Congenital Lower Limb Problems

This is where Kelli is being treated.  These doctors were part of Dr. Paley's team before he moved to Florida.  International Center for Limb Lengthening

This site has some great articles and testimonies of others who have PFFD.  A Guide to PFFD

Somewhere I have a PDF file that explains the superhip surgery.  If/when I find it, I will post it as well.  The site I originally downloaded it from no longer has the file available. 



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